Saturday, November 29, 2008

So this is it...


It comes down to this...what we leave behind. We sat at the estate sale the last two days, listening to people try to talk us down on prices for Tyler's things. Is that really all that's left of us after we die? Things? What a huge disappointment. If that's the legacy I leave behind when I go, I don't want to own anything. (Of course I just purchased a new laptop computer today, but we'll overlook that for the time being.) I want people to remember my kindness, how I loved, how I laughed, how I lived life with respect for others and with reckless abandon. There was so much more to Tyler than his things. I wanted to scream that out to those people today, especially that one guy who kept talking about nothing and negotiating his way to the next bargain. I wanted to get in his face and tell him 'my brother was so much more than the things he left behind.'

Thursday, November 27, 2008

Holidaze


The holidaze are upon us. Yes, I'm spelling it wrong on purpose. I think I may switch to that spelling permanently because the holidaze will never be the same for me without Ty. This year I just want to skip it all.

It is Thanksgiving day and I'm painfully aware of the void in my life. While I am thankful for many things...life, sweet love, family, friends, health, abundance, sun, sky, earth, crisp air, etc...I just miss my baby brother more than I can ever put into words.

Martine and I are off to the store and then to my midwest folks' house. Today we will feast on turkey with all the trimmings, imbibe tasty red wine, laugh at each other's stories and watch the little kids play. But we will also be acutely aware of the missing...

Peace and love to you all.

Tuesday, November 25, 2008

"Move To Grace"



Those of you who attended Tyler's 'Celebration of Life' know that my partner, Martine, and I performed a song. Ty was always very supportive of my musical endeavors, so I knew he would appreciate me singing to him. It was my tribute to him, my way of giving a speech, so to speak...or not to speak. I'm not much of a public speaker, but give me an audience and I'm always willing to sing. That particular night, I was singing from the depths of my heart and soul.

As my family was discussing the plans for a memorial service, it was suggested that I sing, but no particular song came to mind at the time. A day or so later, Martine and I were talking about it and we discovered that we both had the same song playing in our heads the night Ty passed away. We knew then that we wanted to sing that song at the service. The song, "Fall From Grace" was written by Martine Locke and is on her latest CD, "Undone." It's a beautiful song in its own right, but we made some minor changes to it when we decided to sing it for Tyler. What we ended up with is called "Move To Grace" and we like it so much we plan to record it. It will be released exclusively as a digital download. Stay tuned; details will be forthcoming.

"Move To Grace"

Lying in this darkness
I can't find your face
Confusion, wins its race
Questions swirl around me
Like flies about to die
Madness, descends in the night

The further I get from where I started
The closer I move to grace
The further I get from where I started
Ah the closer I move to grace

Whisper your name out loud
Whisper through a cry
You've long since, left and died
Looking for these answers
Searching for your eyes
Misguided, romantic child

The further I get from where I started
The closer I move to grace
The further I get from where I started
Ah the closer I move to grace

I take a breath, I choose to breathe
I give my soul a chance to grieve
Watching, you fall away
I hold my head, I hold my heart
I give myself a chance to start
Walking, the other way

The further I get from where I started
The closer I move to grace
The further I get from where I started
Ah the closer I move to grace


Copyright Passionfruit Produce/Martine Locke, 2008. All rights reserved. (Original song, "Fall from Grace" - Copyright Passionfruit Produce/Martine Locke - APRA 2008. All rights reserved.)

Monday, November 24, 2008

The Great Tylini


The sadness is overwhelming. I woke up this morning with a list of 'things to do' running through my head and, as I was going over that, it hit me...again...that Tyler is no longer part of the physical world as we know it. His energy/spirit is still alive, but the flesh and bones being is gone. The grief welled up and I cried...again. I still can't believe it.

Today I want to share a story with you. The story really has nothing to do with the picture or the finger gesture depicted therein, but like the story, the picture makes me laugh. I need some laughter right now. This story is the legend of the one and only Great Tylini.

When we were kids we spent a lot of time alone, just the two of us. I was left 'in charge' of Tyler a lot and, when we weren't trying to kill each other, we would often make up games or do silly things to entertain ourselves. One day in particular, Tyler was trying to tell me he could perform magic. The 'magic' in this case was the great art of escape. He told me if I tied his hands and feet, stuffed him in a laundry basket, tied him to the laundry basket and then put him in the closet, he could escape. I told him this game sounded dumb and we should do something else, but he begged and pleaded for me to play along. I finally gave in because the pestering was getting on my nerves. :-) We decided I should tie his hands and feet first, so I proceeded to tie his feet together at the ankles and then I tied his hands...behind his back. (Some of you know what's coming next and some of you can probably guess . Are you cringing yet??) Ty got up to 'walk' over the laundry basket so I could tie him to that and then drag him into the closet...but he didn't make it to the basket. In mid-waddle, he slipped on the hardwood floor and did a face plant squarely on his chin. Had we decided to tie his hands in the front or had I brought the laundry basket over to him, this may have been avoided, but alas, these things are usually clearer in hindsight, aren't they? When Tyler looked up at me, there was blood and he was crying. Wide-eyed, I ran to the kitchen phone and started dialing my parents' numbers. When I knew someone was on the way, I went looking for Tyler again. I found him in the bathroom in front of the mirror with a band-aid poised over the gaping wound in his chin. What I said next was probably not the best choice, "Oh honey, you're going to need stitches for that." Oops...my bad. He started crying like the world was coming to an end, or like he did in 2004 when George W. Bush was elected. (Ok, I made up the part about Bush, but Tyler would appreciate the joke.) I tried to reassure him that it wouldn't be that bad, but he wouldn't listen to reason. I mean, why would he listen to me? I'm the one who let him fall on his face. (Disclaimer - For the record, Tyler didn't blame me for what happened that day, but I often blamed myself.) At the hospital I sat with one of my parents just outside the room where they were stitching up Tyler's chin and I listened to him cry. It tore out my heart to hear it, so I cried for him. What a day that was. Lots of tears and 8 stitches later, everything was back to normal. Later, Ty and I joked that the little stitches sticking out of his chin made him look like he had a beard. Even though the great escape never took place, we dubbed him "The Great Tylini" because he was scarred for life from the experience. Much later, we would talk about that long scar running the length of his chin and laugh at our silly kid games.

Sunday, November 23, 2008

Today...


Today is hard. Each day since Tyler's surgery has been hard. Of course some have been better than others, but overall they are just hard. Last night I became aware of a hodge podge of emotions swirling around in me. Picture the agitation motion of a washing machine or maybe an F5 tornado. The tornado is a more appropriate analogy right now because of its destructive force. I feel like my insides are being destroyed by my emotions. It's my goal to take that down a notch (or two...or seven) to the washing machine analogy, to be washed clean by my emotions, but I know it will take a lot of time to get there. It's going to take work too and some days I just don't feel up for it. Today is one of those days. I'm angry, sad, heart-broken, un-motivated... I'm a smaller version of myself, a shadow. I miss him. I miss the long talks, the playful jests, quoting movie lines, talking to each other in that little voice that drove mom crazy, sharing words of encouragement, sharing pride in each other's accomplishments, and the silent comradery. I miss knowing that he was just a phone call or a text message away. The void I feel is immeasureable.

Saturday, November 22, 2008

A Father's Guide



This is my dad and Tyler in Fiji this past May. The little guy in the middle is their white-water river rafting guide. It rained almost the whole time they were there, but they still had a great time. That trip to Fiji now means even more to my dad than he ever imagined. Tyler asked me to go on that trip as well, but I lacked the funds and the vacation time to make it happen. I wish now that I had done it anyway.

My dad asked me to post what he wrote for Tyler's 'Celebration of Life' that took place on November 10th in Carmel, Indiana. It's a wonderful piece. He read it aloud to the crowd at the celebration, but he wanted to get it out to a wider audience. Of course I'm happy to oblige. Please read on...

A Father’s Guide
In memory of Tyler Fulton Ward
Born January 21, 1972, Died November 6, 2008

Everybody knew Tyler. You needed only to meet him for the first time to know him. To all he was respectful and considerate. To his friends, he was special; fun to be with, supportive and giving when the times and caring called for it. There was no need to ask. He was just there to give of himself, that which the times and place required; no questions, no hesitation, no waiting; just doing. And his family of friends never stopped growing; only extending in a way that matched his outreach to others.

Even first-time acquaintances walked away feeling as though they had made a new friend. His spontaneous wit and accompanying facial expressions ambushed funny bones and framed friendships everywhere. Words were rarely a part of his humor. In fact, engaging Tyler in conversation was frequently a challenge met with sparing responses, often clipped as though half of a yes, or no, were all that was required.

At the same time, once engaged, words, phrases and sentences flowed in a flood of ideas that shaped an ideology about a better world. Tyler’s inner struggles were intense, frequently painful yet always toward betterment. Many of his thoughts were expressed in absolutes, others were exploratory and yet others were left open for further examination at another time and in another visit. Tyler never stopped struggling to find meaning in life, his pursuit always constructive, never destructive.

While in many ways his thoughts were private, reserved for those who earned his trust, there was little that was secretive about Tyler. In a world daily spinning forth with a mix of new ideas and fresh offerings about how things ought to be, Tyler sought simplicity in its meaning. And with an inner power, an essence best described as resembling that of the Native Americans and their spiritual, yet earthly connection to this world, he never lost hope in the pursuit of his dreams.

His inner struggle was a private one shared fully with only a few, though there is one person Tyler trusted fully with thoughts of hope and happiness – his sister, Dionne. Often, she was my source of what was up with her brother. The closeness they shared is typically found only with twins. Ginny and I took great pride and comfort in what was a relationship tethered by love and text-messaging.

For Ty his journey ended several days ago in his death. His passing is to me a freak of nature. In the natural scheme of things I would go before him. At the same time, I have had an opportunity during this ambush of nature to more fully appreciate Ty through a renewal with some of his friends, like Mandy and Jihyun – and others I have met only recently – Suzanne, Ruth, Andy, and Steve – about who I had heard much. While there are many others I know by name and story only, it is in them that I find Ty.

Though Ty and I were separated by a physical distance between here and the West Coast that spanned 25 years, that distance never interrupted our talks. Those times were part of an unbroken exchange between Father and Son. There was no pause each time we met as in – now where were we -- but rather more like a pause before completing a sentence. In our talks I listened to the anger that comes from impatience and the hope that comes from the chase, never challenging either, only listening.

While our time together was not of the design I had envisioned, a transformation did take place during the time we had, which transition is perhaps best illustrated by a couple of stories.

When Tyler was a junior in high school, I took him to Turkey for a sailing trip in the Aegean Sea. Dutifully, he brought his schoolbooks. I suggested he put aside the books for a different kind of education. That schooling included exposing him to a different culture where the people were the same, only there the language and ways differed from what he knew. The experience included his first shave – by a Turkish barber – something we did together each morning to start the day.

It felt right then to be a guide to my son through a sea of knowledge. One filled with history, mystery and mythology. He came away from that experience a citizen of the world.

Only this last May when we traveled to Fiji -- where we shared yet another foreign culture of learning -- did he become the guide. There, in torrential rain we went white water rafting in the jungle-laden waters – as in Romancing the Stone – where the Fijian villagers knew no passage to markets except by water.

At the launch I expected to be positioned at the bow of the raft because of my experience in white water. Instead, I was placed at the center of the raft and without a paddle. When I objected, Tyler pulled me aside and said, “I think in this culture, Dad, you’re being seated in a place of honor, in recognition of your age.”

This was the time of transformation between Father and Son. Tyler was now instructing me. He was now my guide to the world. And he will be that for me – and perhaps for many of you – until the day our ashes are scattered on this Earth.

And our pursuit for meaning in life, as with Tyler’s, is left behind as inspiration for those who follow; to continue and ultimately, with the force of Tyler’s spirituality, to search for meaning in this life and to never give up the chase.

- Dale Ward

Friday, November 21, 2008

The process and all its facets



This is one of many pictures surfacing in the wake of Tyler's passing. His friends are sharing photos of him from 10, 15, even 20 years ago. This is Ty with Goofy, the cat. From what I've heard, there was a cat named Mickey as well. (I'm sensing a Disney theme here. Walt would be flattered.) Apparently Tyler could make Mickey and Goofy sing just by pointing at them. He also taught Goofy how to assist in giving a back rub. (Not depicted here, but there are witnesses. Thanks to Tracy for the photo and to Nicci for the story.) I've seen some of these photos, but most of them are new to me. It's a little bit like opening a present you weren't expecting. There's the gushing of genuine surprise and joy. This is of course followed by overwhelming sadness as I'm reminded of the huge piece of my soul that is now missing. Don't get me wrong; I want to see all these photos and hear all of the stories. Keep them coming, please.

I talked with my mom last night and had lunch with my dad today. Of course we talked about Tyler and the huge void in our lives now that he is gone. Both of them are holding on to me just a little tighter and both have expressed apologies or just general awareness of that fact. I don't necessarily think it's a bad thing. I'm sure I will need to lean on them as well, just a little more than I did before. It seems like a natural part of our grieving process as Tyler's family of origin. My step-parents are in the boat with us too, riding the same stormy seas. We are sharing the same experience. Their experience is from a parent's perspective and mine from a sister's perspective, but it's fundamentally the same. We have moments, every day, when we see something, hear something, or think of something that reminds us of him. Some of those moments make us smile or chuckle, some of them make us cry, some of them make us angry and ask the universe again...why did this happen??? We have moments when we forget for a second that he's really gone, but the reality always comes swinging back at us like a rogue wrecking ball. There's no escaping it.

I've been told I need to start reading about the stages of grief. (Thank you, my love, for looking out for me. You have been by my side through all of this and I am eternally grateful for your presence in my life.) I know that's true, but I'm not even sure I've reached the stage of acceptance regarding the fact that I have this long, painful grieving process ahead of me. It's so hard to face. The moving forward feels like letting go of Tyler to some degree and, in my gut, that feels like a betrayal. Of course I know I NEVER have to let him go completely because he will ALWAYS be a part of me, but it's still hard to forge ahead. I know to continue to honor Tyler, I also have to honor the grief, so...that's what I will do. I want to do it right for my sake, for the sake of those I love, and for Tyler's sake. He would want that for me, for all of us. Some of you have shared your experiences of loss with me and I appreciate that. If any of you have any more words of wisdom to share, I'd love to hear them and pass them on to my folks. We will have to process our grief as a family and as individuals, and it will not be an easy road. Thank you all for your ongoing support.

An honor...


If anything good has come of this loss, and I stress the word IF, it is the coming together of people with a common purpose. It is the reconnecting with old friends, the renewed bonding of family and the discovery of new friends. We've been given the opportunity to revisit the seasoned relationships, to say the things we left unsaid and maybe even start anew. We've also been given the blessing of new connections with people who share in the loss of Tyler, or the loss of another...or those who simply want to help see us through our pain.

I have a new friend in Illinois. I've only met her once, but we've shared sentiments and words of wisdom from afar. She sent her positive energy and healing thoughts to me and my family every day while we waited for news. She was there sending heartfelt hope and encouragment all the way through to the bitter end. She's riding her bike in the "El Tour De Tucson" on Saturday and she'll be wearing the jersey in the photos above. She has honored Tyler, and those who love him, by having his name put on her jersey. He is right below her cousin, Marian, who passed away in July. She told me Marian and Tyler are her "main angels this year, one on each pedal" as she rides. If Marian's spirit was anything like Tyler's, I know they will carry her through with ease and grace.

KC - You have been a blessing in Martine's life and now you are one in my life. You never knew Tyler, so it's even more amazing to me that you honor his life...without question. Thank you for being an amazing person. I know Ty is smiling down on you. We'll have that glass of wine the next time we meet and we'll toast to life, love and riding like the wind! Good luck on Saturday. We will all be cheering you on.


Wednesday, November 19, 2008

Another poignant moment


So I'm sitting in an all employee meeting today at work. We have one every year about this time to go over benefits changes, profit-sharing, company news and other tid-bits. Today each employee was given a baseball cap with the new Chace (Chace Productions is where I work) logo on it. 2009 is the company's 25 year anniversary, so we're launching a new image/website, etc. Anyway, for those of you wondering...getting the hat was not my poignant moment. If it was, then it would be my hope you would ALL stop reading this blog. :-)
I digress...

The poignant moment occurred when they were talking about our benefits and they mentioned life insurance. I had forgotten we even had that benefit and I had a sudden realization that I had put Tyler down as my beneficiary when I filled out the form back in December 2007. I felt sick. I had similar moments when I saw Ty's email addresses in my gmail contacts and his name in my cell phone contacts. Deleting or changing those things feels like a betrayal, but I keep telling myself I need to do it. It's so hard to accept the reality of it. I guess I'm still in the denial phase and that means I've got a long way to go in my process. I know I'll cry over that damn beneficiary form when I fill out the new one and, frankly...it sucks.

The picture above is of a photo collage that we (mainly Martine and I, but my dad and Ginny helped in the final phase) created for Tyler's 'Celebration of Life' event. So many memories are captured on that canvas. He was such a beautiful soul and I dread all the poignant moments like the one that occurred today. I hope those moments are eventually balanced with the 'good memory' moments...remembering the laughter and heart-to-heart talks I had with him.

Peace.

Tuesday, November 18, 2008

The fam on film


This picture was taken last Christmas. I remember it so well. Since I moved to California late in 2006, I missed seeing Tyler every day. We used to hang out together on our afternoon breaks at Sallie Mae. So, every time he came out to visit, I was elated!!! We always had such a great time together, no matter what we were doing. Some of us would tease him about photos of him because he tended to close his eyes, or only one eye. After a while, he started doing it on purpose, like in this photo. He was always goofy, even when he was being serious...if that makes any sense. Those of you who knew him well probably know what I mean.

We brought back a bunch of photos Tyler had on his computer and Martine was going through some more photos today while I was getting ready for work. She found some videos he had taken of us (Ty, my dad, Ginny and me) decorating the Christmas tree last year. I remember that evening so well. We had music playing and wine breathing while we riddled the tree with ornaments; some new, some old and some ancient. When we were done, we toasted our masterpiece and sat in front of the fire, chatting. I cried as I watched the four of us milling around the tree, joking with each other and humming to the tunes playing in the background. I laughed too when he winked into the camera before setting it down on the mantle to record our tree-decorating event. Watching those videos made me miss him so very much. It is going to be so hard to be without him this coming holiday season and on what would have been his 37th birthday in January. Who am I kidding? It's going to be hard to be without him every day, for the rest of my life.

Monday, November 17, 2008

A tribute


So, here it is...I got this tattoo on Friday. I had been planning to get a Phoenix tattoo for about 2 and a half years now, but the timing never felt right. Now I think I know why. I had the artist (Matt at Metamorphosis in Broad Ripple, Indianapolis) add Tyler's first and middle name to the design I had chosen. He is now forever etched in my skin, as he is in my heart and soul. Any time someone asks me about his name, I can tell them about my baby brother and how wonderful he was.

The Phoenix is a symbol of rebirth, ressurection and immortality. The meaning for me was initially related to the huge changes I've made in my life over the past two years, but now that meaning is deeper. It is a symbol of my rebirth in life and Tyler's immortality in death. He will live on in all of those who loved him...and there are a lot of us.

I talked with Tyler about wanting to get a Pheonix tattoo. He always said that's what he wanted too and that I stole his idea. Well, sweet brother of mine, I got this one for me and for you. Love always...

Sunday, November 16, 2008

Back to life


I'm sitting here, back in Glendale, trying to decide whether to keep this blog going...at least for a while. We landed at LAX yesterday, weary from the flight and sad from the experience of saying farewell to Tyler. I carried his ashes in my carry-on bag, along with the death certificate...and I still can't believe it's real. I keep expecting to get a text message, an email or a phone call from him. I have moments when I realize that will never happen again and it hits me hard in the pit of my soul. Then I get angry. How can this be? How did this happen? He was so young and alive.

The picture on this post was taken in the backseat of my grandmother's car in August of this year. My mom, Ty and I had made a trip to Edmonton to help my grandma get organized for her big move. She was leaving the house she lived in for 50+ years to move into a senior apartment building and she wasn't happy about it. She said having us there for those few days helped her tremendously. Looking back on it, I realize it helped all of us. It felt really good to lead my grandma around on my arm and chat with her as we walked. It feels even better now because of the quality time I spent with Tyler while we were there. I remember being so excited about the trip because I missed him so much. I missed my mom and grandma too, but it's not quite the same kind of missing. Tyler and I had a one-of-a-kind relationship. I've said this before, but it is worth repeating...I am so grateful for those few days spent in Edmonton with him. I've heard a lot of people talk about regrets regarding their relationships with those they have lost. 'If only I had told her...', 'I wish he had known...' I'm happy to say Tyler always knew how important he is to me and how much I love him, so I have no regrets like that. I'm just going to miss the time we could have had in the future...the time that will never be. My heart aches over that.

For now, I think I will keep this blog going. I can share pictures of Ty and thoughts about his life and what an incredible person he was. I think it will help me in my grieving process and maybe it will help some of you as well.

Tuesday, November 11, 2008

Tyler Fulton Ward


January 21, 1972 - November 6, 2008

Brilliance

the brilliance
radiates
in all
that he is
in all
that he does
the brilliance
resonates
in his soul
shines
from his heart
spills
from his lips
the brilliance
emanates
astounds us
lives on
in all of us...
it is
eternal

- Dionne Ward

Thank you to all who attended Tyler's 'Celebration of Life' last night. I know he was there with us.

Thursday, November 6, 2008

A Celebration of Life


Tyler's 'Celebration of Life' will be at St. Christopher's Episcopal Church, 1402 W. Main St, Carmel, Indiana 46032 on Monday, November 10, at 6:00pm. We will have a reception at the same location immediately following the service. In lieu of flowers, please make a donation to Habitat for Humanity in Tyler's name.

Thank you to everyone for sending your love, prayers and positive energy to Ty and my family. Being a witness to the great love and respect everyone has for him is truly a blessing. He will live on in all of our memories and in our hearts.

He is at peace, but I will never be the same


Our grandmother and two aunts came in at around 11:00pm, all the way from Canada. They said their goodbyes and we all cried together. Various friends of Tyler's came in yesterday and today to visit him, and more have yet to arrive. He is so loved by every person that his life has touched. That's the kind of guy he......................was......

Tyler Fulton Ward, age 36, was taken off artificial life support at approximately 1:00am on Thursday, November 6, 2008. He passed away at 2:11am with his family of origin and some of his chosen family by his side, holding his hands, his arms, his legs, and his toes. I watched the life slip away from him, as I held his hand and rubbed his face. I told him we were all there with him, told him how much we love him, and told him that it was ok for him to go...whenever he was ready. He was ready. I think he was just waiting for permission. As I told him earlier tonight, I will be ok and my life will go on, but I will never be the same.

As soon as my family makes the plans and arrangements for the memorial service, I will post that information on this blog. Please feel free to share the blog address or memorial information with anyone you think may want to know. Thank you all for caring about my baby brother. He was truly an amazingly wonderful man and I will miss him forever.

Wednesday, November 5, 2008

The brilliance


Here I stand, my shadow cast upon the brilliance of this red foliage. I spotted it as we were driving back from the hospital and it reminded me of the brilliance of Tyler. Not only his intellect, but his personality, his sense of humor, his kindness, his love...I could go on and on about the brilliance of him. He has touched many lives. It has been a blessing to have him as a brother and a best friend. I am only a shadow of myself today, knowing that I have to say goodbye to him...

We were told today by the neurosurgeon, as we looked at the latest MRI pictures, that there is no hope of recovery for Tyler. He will not wake up and be himself ever again. If we keep him alive with machines and tubes, he will have no quality of life and we know he doesn't want that. Tonight at midnight we will watch as the doctors and nurses remove the artificial life support and then we will hold his hands and wait. We will let him know he is loved, he will be missed forever, and that it's ok for him to go.

I love you, Tyler Fulton Ward. We all do and you will be with us, in our hearts, forever.

Tuesday, November 4, 2008

Impossible news

It is with great sadness that I write this update. It was determined today, based on MRI results, that Tyler is in a permanent vegetative state. The front portion of his brain has been severely damaged by a massive stroke. My Indy parents are waiting to talk to the neurologist before making any decisions. None of us were prepared for this scenario. It just wasn't an option. I'm in shock and I know anyone reading this is experiencing the same reaction. I don't even know how to ingest this news. How did this happen??? My Dad and step-mom are heading back to Indianapolis, and I'm sure I won't be far behind. More later...

Monday, November 3, 2008

Hope, tenacity and stubborness



This is Tyler giving me a peace sign, or a gang sign, or as my partner Martine tells me, it means something completely different in Australia...something we associate with the middle finger. :-) At any rate, when he held his two fingers up to me in August when we were visiting our grandmother in Edmonton, I knew it was meant to be nice gesture. We had a great time hanging out together during that trip. I am even more grateful for that time now...

The stroke Tyler had occurred in the frontal part of his brain, on both sides. The blood vessels were "spasming" and they don't know why. There seems to be no explanation as to why this was happening in a part of his brain that was not touched during the surgery. Ron told me it's an area of his brain that controls the lower part of his body. It's POSSIBLE (nothing definite here) that he will lose the use of his legs. They are doing an MRI today to determine the extent of the damage. I still remain hopeful that Tyler can overcome whatever damage has been done to his body, through rehabilitation and tenacity. Most of us know how stubborn he is and that will work in his favor throughout his recovery process. Peace and love.

Sunday, November 2, 2008

We wait for news and keep the faith




This morning I got a call from Dad telling me that Tyler has had a stroke. We still don't know what caused it or the extent of the damage done, so again we wait...wait for news from the doctors. They did a series of tests on him today, including an angiogram. They need to determine whether the stroke was caused by an aneurism, a hemmorhage, a blood clot, or....?

I met a woman tonight who told me she had brain surgery about a year ago. I believe she said she had an aneurism. She was out of the hospital in 4 days, but she is just now, a year later, feeling fully recovered. She said it was an exhausting and frustrating process, but she gave me hope...

I was told that he opened his eyes today, but did not squeeze when his hand was held. I wanted to include this photo sent by his friend, Ruth, because it portrays the Tyler we all know and love. We know you are in there, Ty, and we know you are fighting to get better. We are all with you, some of us in body and some in spirit. Keep fighting!!! We miss you!

Saturday, November 1, 2008

A pat, a squeeze and a grab

Sorry there was no Halloween post. Tyler spent most of yesterday sleeping, but I did hear a bit of news when Martine and I were on our way to a Halloween party. Tyler was patting the heads, squeezing the noses and grabbing the hands of his late evening visitors. They were very happy to see his personality coming out after a day of non-responsiveness.

Tyler's fever continues to be a challenge and they are now calling it a central fever. It's most likely related to his brain trying to heal itself, rather than an infection. They moved all of his IV lines yesterday, just to be sure the fever wasn't being caused by a site infection. He's not very responsive again today. The fever is causing fatigue and he's also probably a little sleep-deprived. His body is demanding that he rest!

They will be doing another CT scan tomorrow just to check on his progress. The fluid draining from his brain is getting "clearer" which COULD mean he won't need a permanent shunt.

That's all I have for now. Thanks for reading, and for continuing to send out your thoughts and prayers for Tyler. Peace and love.